Today was a much better day. Harper came off of the EEG machine, and it
indicated no seizure activity. The doctors have decided that given how
well she is doing and the fact that her vital signs are so good they
will not do a spinal tap at this time- she has no other signs of having
an infection, so they're going to give her some time. They still
strongly believe that the other night's episode is seizure related, and
they decided tonight to take her off of the phenobarbital and increase
her Keppra dosage to see how that works for controlling seizure
activity.
Harper got moved to a big-girl crib today, complete with mobile and
aquarium toy (which she loved!). We got to wash her hair, change
diapers, hold her, change her clothes... All kinds of wonderful parent
things! She also got restarted on her feeds, although she did rip out a
feeding tube and have to have it replaces. (Apparently she is over all
of the tubes!)
One of our favorite doctors came to talk to us tonight, and she said at
this point they feel good about Harper's progress and their goal now is
to get her ready to go home. That means they have to get her dosages
worked out on her medications- finding the right seizure medications,
making a decision about reflux meds, and getting her off of the morphine
(she can go home with the methadone). We also have to get her feeding
worked out as she still is not able to suck and swallow, so speech
therapy will be working with her this week and doing some evaluations.
We continue to be so thankful to all of you who have been praying and
sending such sweet messages of encouragement, and we are so blessed that
God has given us such a feisty, spunky little girl who is showing
everyone what His miracles look like!
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