What a day! Harper was not a happy girl today. She is extremely
congested for some reason, and it is making it difficult for her to
breathe. Because of that, she had to get checked quite a bit and had to
have a chest X-ray, which she did not care for. It also caused her
heart rate to be elevated most of the day, and prevented her from
getting the good rest that she needs right now. They also came down a
little bit more on her morphine, and she had a couple of more episodes
with vomiting after feeds. All of that combined with still having a
healing wound on one side of her head, an EVD drainage tube on the other
side of her head, and a feeding tube in her nose made for one very
unhappy baby today.
Harper also had visits from the physical therapist and the speech
therapist today. PT worked some with her and said overall things looks
good. They're just continuing to work with her tight muscles in her
upper body. Speech therapy came in to evaluate her readiness for bottle
feeds. Unfortunately, they decided she is not quite ready- because of
the time she spent on the ventilator she has lost coordination with
sucking and swallowing. So, they will have to continue to work with her
on those skills and she will have to continue with the feeding tube for
now.
On a positive note, Harper did have another c/t scan today, and from
what we understand it was good news. It appears that she has continued
improvements in her ventricles and that she may be starting to absorb
some of the fluid on her own... We're still waiting on official reports
from neuro, but so far it sounds very positive.
Prayer requests for tonight... Pray for rest for Harper and relief from
the congestion, and also that they don't find any major issue causing
it. Also pray for a very weary mom and dad at this point- we've been so
very blessed and have no reason to complain with all of the support we
have, but it is draining to spend so much time watching your baby
struggle and to be away from home and our other babies for so long.
Thanks for the prayers, love to all!
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