Here's a basic run-down of yesterday's events before we head into today...
Harper was very agitated all day with very little rest. She has
full-blown stridor at this point, which means she squeaks when she
breathes and has a very difficult time breathing. She began to have a
few small episodes in which she would "desat," which means she just
wasn't getting good air. By days end she received two breathing
treatments by the respiratory therapist for her swollen airways, had
another chest X-ray, and had a visit from the ENT specialist. The ENT
performed a laryngoscopy, a procedure where they put a scope through her
nose and airways and take pictures. Her initial thought is that Harper
may have laryngomalacia, which is where part of the larynx (voice box)
is weak and collapsing, blocking part of her airway. However, further
evaluation is needed, so we should hear back from them today. Harper
also continues to vomit frequently, so two things they are considering
are adding reflux medicine and performing a bronchoscopy in the OR, but
nothing has been confirmed yet.
From a neurological standpoint the day was eventful as well. First the
neurologist decided to clamp off the EVD to monitor how well Harper is
handling the fluid in her brain on her own before they made a decision
about removing the tube. Then in the afternoon they came in to change
the dressing around her tube, only to discover that there was no suture
closing the area around the tube and it was leaking! This changed the
plan, and they had to go ahead and pull the tube early and stitch her
up, so they will be closely monitoring her head size and she will have
another c/t scan today or tomorrow.
Medicine-wise... She is still on the same meds, and they are looking at
adding reflux meds to her long list of drugs. They stopped the constant
morphine drip, but she is still receiving doses of morphine through the
day as well as the methadone to help with morphine withdrawal.
I think that covers all of yesterday... Now we're off to see what today
holds for our girl. Thanks for the prayers and encouragement!
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